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The unique UK national honour was created by Her Majesty to mark the Golden Jubilee in 2002 and to recognise the outstanding contributions made to local communities by groups of volunteers.

The award is equivalent to the MBE and is the highest award that can be made to a voluntary group.

Founders Jared and Sarah received an invite to attend a Buckingham Palace garden party hosted by the Queen and members of the royal family.

Jared “We are so proud to receive the Queen’s Award on behalf of all our volunteers who support the important work we do for patients and families touched by vascular EDS, receiving this award is a real morale booster recognising the work of the volunteers”.

Annabelle’s Challenge is among 27 other volunteer groups in the county to receive the award with 250 nationally announced on June 2nd.

Victoria Jennings, volunteer, said “We have also experienced the charity helping us on a smaller scale too, in that recently my son went into hospital for 2 weeks at GOSH. Annabelle’s challenge found out and sent down a gift of some Lego for my son so that he had something to occupy him as well as some cash for treats so that he could be a little bit spoiled! It was totally unexpected but such a lovely gesture and was even more surprised when Jared himself popped into GOSH to see us during our stay there”.

Jared “A special mention also to Karan Lee for nominating Annabelle’s Challenge for the Queen’s Award”.

Dr Glenda Sobey, Clinical Lead NHS EDS Diagnostic Service “The fact that Annabelle’s diagnosis led to you and your family establishing this charity specifically for vascular Ehlers Danlos syndrome has been a wonderful benefit for all patients with vascular EDS and their families. We find that, in rare disease, a great comfort is provided by a charity which is both knowledgeable and supportive. It is a great privilege for the National Diagnostic Service to work closely together with you and we have very positive feedback from our patients who have been in touch with the Charity”.

Representatives and volunteers from Annabelle’s Challenge will attend a formal presentation at The Monastery in Manchester along with the Mayors of the Ten Boroughs of Greater Manchester. The awards will be presented by the Lord-Lieutenant and the Vice Lord-Lieutenant on Wednesday 29th August.



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